Friday, November 2, 2012

The results are in....

Finally got in for my PET scan on Monday, and called today to see if the results were in.  They were and unfortunately it wasn't "all clear" this time.  There was a hotspot in a lymph node in the lower left part of my neck.  While any spot isn't good, its not something I am worried about yet.  It is small, and my onc is going to do the PET scan more frequently so they can watch it.  My next treatment is in December, so I would anticipate a scan will be ordered prior to that.  They told me today that if it gets bigger they will do a biopsy and go from there.  Time to watch and wait.

A lot have already asked if I am doing okay, and yes I am.  From the first day when my onc told me I had cancer, I have had a positive outlook.  This won't beat me down either.  Even if it is back.  I know that at some point I will probably relapse.  If it happens this soon, well, my onc will have a plan.  So this is just another walk in the park.  But it is something to pay attention to, so up periscope!

More to come!

Thursday, October 11, 2012

Rituxan it is.....

Though I missed my pet scan due to scheduling flub ups, today I went back on the maintenance Rituxan treatment.  It has been about a year since I received a dose of Rituxan, so it was kinda strange feeling the tingly scalp over the 3 hour treatment.  High blood sugars tonight due to the steroids to counter the Rituxan side effects.  Boy, I sure do remember the previous treatments.  Next week I will have another pet scan, and look forward to hearing there is NED (no evidence of disease).  So far, no signs of trouble from treatment, so smooth sailing.  Gonna be doing treatments through next year, so there are 7 more rounds.  Most survivors have about a 1 year maintenance period, with some two years.  Gonna trust the oncologist on how long we do maintenance and hope to keep remission as long as possible.

Till next time, iBelieve!

Tuesday, August 28, 2012

Bye Bye Bubbles

Met with my oncologist yesterday and discussed if it was time to go back on maintenance and see if the immune system can handle the Rituxan again.  Bloodwork showed good numbers for the immune system, so we decided to postpone til October to go back to the Rituxan.  Naturally, the long term goal is to stay in remission and no have any recurrence of the lymphoma.  So October it is, and hopefully it won't hit me too hard since I have been off of it since October 2011.  Will have my next PET scan before it too.  All is well, thankful for this.

Bike to Beat Cancer 2012 is coming Sept 22nd, help support my ride for a near and dear cause for me.

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Thursday, August 2, 2012

Bubbles did

Latest round of immunoglobulins, aka Bubbles, all went well.  I was pretty exhausted from my day job, so I kinda snoozed through this one.  Meet with my oncologist today, discussed going back on the rituxan or staying on immunoglobulins.   His concern is it will crash my immune system again, so he is going to do some bloodwork at the end of the month and see if it looks good enough to go back on the maintenance drip.  Exciting day.

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Bubble, look for the eye at the top, kinda cool

Thursday, July 12, 2012

All Clear Again!

Tuesday I got the results of my latest PET scan.  All clear!!  Cruising on through this year!!

Just gotta keep on keeping it on!!

Thursday, June 21, 2012

Bubbles again!

So I have my latest round of bubbles yesterday.  All went well.  The only thing I missed was my PET scan.  Now, I just don't understand how they can schedule you 3 days out and on a Saturday.  Sometimes you just miss checking the messages and this time it caused me to miss the appointment.  So I have to wait till after I get back from Florida to get my scan done.

Doing good, just keeping up with the treatments.

Bike To Beat Cancer 2012, September 22nd, come out and cheer us on!!

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Friday, May 11, 2012

Bubbles again

So, I guess I forgot to post in April, but I had another round of bubbles which went well as usual.  Yesterday was round 6 of bubbles, also known as IVIG, or simply put immunoglobulins.  As expected, all went well.  Next month I will have my next PET scan, and I anticipate a NED result.  Thats No Evidence of Disease for this who may be wondering.  So all is good.

Ankle is doing better, but my elbow is having some issues now, a little bursitis (tennis elbow).  Got an MRI next week, so we'll see.  Not taking any chances, same arm that had the big tumor in it, so getting it checked out.

Very excited to ride in my second Bike to Beat Cancer ride this year.  Definitely gonna be a better ride than last year I hope. :)  While I would love for the support on my ride, I do not expect it.  Every little bit helps too.  But even just encouragement helps, so join in, and lets Bike to Beat Cancer!!

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Bubbles times 6